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If the search for information has you running around like our little friend, check out some of the links below. Some are pretty standard resources, others are exceptional, and a few are worth a visit just to say you've been there! And be sure to come back every so often as I'll be adding more links whenever I can.

Ivy is a "hearing dog" from the San Francisco SPCA Hearing Dog Program. For more information about the program click the picture.

Cerebral l Palsy Video

Click Below to View you will need Real Player

Broad Band

Dial Up

 

http://www.k12academics.com

Education and disability resource center for schools, teachers, ed. Majors, parents & students throughout the U.S for grades k-12. Our site maintains hundreds of thousands of hits per month. We are one of the top education web sites on the internet according to Alexa.com (powered by Google) the leader in web traffic statistics.

http://www.bc-camping.com

Direct contacts, descriptions, photos and maps for campisites, RV parks and camping in British Columbia, Canada.

http://pub42.bravenet.com/forum/show.php?usernum=3603136811&cpv=1

Children with Cerebral Palsy MSN Support Group. ChildrenWithCerebralPalsy@groups.msn.com

http://blog.maryrobinsonreynolds.com/?p=43

Check out this web site about the Kozijavkin Method

www.reha.lviv.ua

Cerebral Palsy Portal is for the use of all wishing to learn more about the condition of Cerebral Palsy. Cerebral Palsy Portal is a blog for further discussion to enhance the lives of those with Cerebral Palsy.

http://cp-portal.blogspot.com/

http://www.w3.org/WAI/

"The power of the Web is in its universality. Access by everyone regardless of
disability is an essential aspect."   -- Tim Berners-Lee, W3C
Director and inventor of the World Wide Web

WAI is Web Accessibility Initiative . It's the
world wide web internet consortium accessibility site.

AllRefer.com - Reference & Health

Educational resource provides a comprehensive collection of reference, encyclopedia, health, gazetteer, country studies, and educational databases. Includes more than 150,000 articles on topics covered under health, history, science, people, places, arts, sports, plants, animals, technology, philosophy, religion, literature, and more.
 

http://www.worldeducationalresources.org/

Mission Statement:  World Educational Resources is dedicated to providing free and low cost services to small business, Schools, which includes government, private and non-profit schools, educational institutions and those organizations who work with individuals with disabilities and other non-profit organizations, volunteer fire departments, law enforcement and others in the educational fields.. We encourage others to contribute their products and/or services to this noble cause, as everyone benefits from this endeavor. Childcare includes any organization, private or governmental, who provides childcare services.

www.hross94.freeserve.co.uk

http://www.spiritwheelsministry.com/

Self-Advocacy And Client-Driven Life Planning For Those Wanting To Live Independently: www.indepfocus.com

http://www.abilitiesfund.org/

Ferdinand Mariano, from Makati Philippines emailed me with a link to a Philippines CP resource page. It's worth taking a look at. Good info.

PCPI C.P. Resources

If you would like to find help from the people that live and deal with CP on a daily basis try the new:

CP Open Forum Bulletin Board

Here at Athena's Confections we take pride in the quality and creativity that goes into each item we make.

Go To Athena's Confections

If You Need A New Picture To Send To Family and Friends Click On The Link Blow.

Have Fun! :) BIG SMILE, PLEASE! :)

Magic Cyber Camera

Euromed Internet Page

Euromed offers intensive and individually scheduled non-surgical treatment for locomotor development in children and adults. The Center was founded in April of 1994. Since that time, Euromed has treated over 2000 patients from many different countries including Poland, The USA, Canada, The Great Britain, France, Spain, Italy, Germany, Sweden, Australia, The United Arab Emirates, Kuwait, Denmark, Egypt, Taiwan, Venezuela, Portugal, The Republic of South Africa, Colombia, Bulgaria, Israel, Liban, Libia, Turkey, and Greece. The therapeutic services offered by Euromed are performed by dedicated, experienced and professionally trained physical therapists, occupational therapists, doctors, nurses and interpreters. Read More

This is the text of a speech I gave for the California Department of Developmental Services at a symposium held for social service professionals from all over the country on outcome based programs in October of 1998 in San Pedro CA. My intentions were to expose the lack of utilization of resources for consumers by their caregivers, counselors, and administrators because they often overlook the most important "resource" of all...THE CONSUMER!

It is not enough to just plug a consumer into either this program or that assistance scheme. It is nearly always more important to get meaningful feedback from consumers than it is to follow the advice of any panel of "experts". Without accurate and timely input from consumers no project, service, or support will succeed in its intended purpose.

Read The Speech !

P.A.I. - Protection And Advocacy Group: "Advancing the human and legal rights of people with disabilities."

Jim's MS Gallery

Disability Studies Quarterly

Assistive Design: EMAIL: Experience A New Level Of Independence, Electric Leg Bag emptiers. Assistive Designs PO Box 1053Bracebridge, Ontario, Canada P1L 1V3 phone: (705) 644-1200fax: (705) 646-8845William Charlton, M.D.

InfoSource: "A superior resource and a very useful healthcare publication." Robert Armstrong - VP, Alliance Nursing Homes Inc.

InfoSource is introducing its newly published title, "The American Nursing Home Directory". This brand new directory provides comprehensive and accurate information on ALL nursing homes, long-term care facilities, nursing home corporations and assisted living facilities throughout the United States. It includes senior managers, beds, specialized services, type of ownership, employees and much more.

The American Nursing Homes Directory is available at an introductory price of $285.

To order the American Nursing Home Directory, please complete the information below and fax it to 905-751-0199 (tel: 905-751-0919).

Name:
Title:
Organization:
Address:
City:
Postal:
Tel:
Fax:
email:

Infosource Group is a leading information publishing firm with offices in North America and Europe.

Whispers Of Hope: CP Resources - Email

Learning From Each Other: Success Stories and Ideas for Reducing Restraint/Seclusion in Behavioral Health. Recommended.

Protection & Advocacy links by State: If you feel that you have been short-changed or discriminated against because of any reason concerning disability or need a little guidance or advice in protecting your rights you can find the agency in your state that is there to help. They are there to serve the disabled community at large, regardless of which disability or extent of it's effects. These agencies can and do investigate certain situations and pursue legal recourse when needed. They are not personal injury lawyers to represent individuals, but have the ability to help you secure those services if you need them.

Air Carrier Access Act: Common Questions & Answers About Air Travel For Wheelchair Users.

The National Institute of Neurological Disorders and Stroke / Cerebral Palsy: This site should be required reading for parents with a new diagnosis of a child with CP. It provides a great deal of basic information that would immediately improve not only the child's prognosis, but the parents outlook and understanding as well. Stroke and patients of other neurological conditions can be better helped and understood using the information here as well.

Hypertext Webster Gateway Dictionary: Like it says, it's a dictionary. But there's lots more to it than just that. You can access Roget's Thesaurus, WordSmyth English Dictionary -Thesaurus, WWWebster by Merriam -Webster Inc, dict.org and Dictionary.com from this page.

Amazon Book Store: I'm sure that almost everyone has heard of Amazon.com. But just in case you haven't, Amazon.com handles a huge listing of books that makes them one of the most popular sites on the web. I ran searches on a few "obscure" books relating to disabilities and guess what!?! They came up in nothing flat!

Advantage Bag Company: You can find all kinds of bags designed especially for use with wheelchairs and walkers and about any other type of mobility aid I know of. I use their products myself and have always been very happy with their quality. This company was started out by another disabled woman on a tabletop at home because of her own disappointments with the products that were available at the time. It has become one of the most respected suppliers of these types of products that I'm aware of.

Service Dogs and More: This site is going to the dogs! Learn about service dogs and find links to other sites about them. Ivy, my hearing dog, falls into a special category of service dog...but she's so much more in my life.

Allexperts.com Medical/Neurology Resource: Get connected to real medical professionals through this resource.

Trish and John's Resources for Parents With Disabilities: There is more information here, or is linked to from this page about parenting with disabilities than I've ever seen before. It is the only site that is completely dedicated to that subject that I have ever found. Trish and John provide a vital and much appreciated starting point for anyone with a disability that is a parent or considering becoming a parent in any of its aspects.

Dr. Ruth Webb, Phd: has spent most of her life as a counselor and written extensively about disabilities. She has CP, but more than that she has a wealth of knowledge and experience she's willing to put to work for you. Need help? Go see Dr. Ruth's site!

US & Canadian Independent Living Centers by State: This page lists by state and province the organizations within them the resource services available that assist in obtaining living arraignments for people with disabilities. It is sponsored by the "Uppertone for Quadriplegics" which is a spinal cord injury resource.

U.S. Dept. of Education: This site is the starting place to find student aid for any person. It will take some detective work. If the information you seek exists, you should be able to find it here.

Anee's Cerebral Palsy Info Central: Anee has one of the most comprehensive sites for all things concerning CP I have ever visited. If you need to know something, want to find something or just join in the CP community, this is a great place to start!

The Disability Link Barn: If there was an award for the site with the most links in the disability field this one would definitely win. 1,000 PLUS AT LAST COUNT!

Disability Info-Center: This site gives you a fast, well rounded group of disability links consisting mostly of those sites which are of the most interest and/or importance to the individual, family, care-givers or professionals providing services to those with disabilities.

DAWWN: Disability Advocacy Work With Networking: A site filled with many, many useful links to both commercial and non -commercial sites.

Cerebral Palsy Tutorial: Basic information about CP with links for other disabilities.

Cerebral Palsy and Deaf Organization: This is a brand new website (4-99) and they haven't had the chance to post much, but from the smiles I found on their page I expect some really good things to come.

The Cerebral Palsy Network: This site has made some changes. When you get a chance take the time to stop by and visit the site.

Deanna Powers links: Here are some more of her cool links.

National Down Syndrome Society: This site provides information for parents and professionals alike about the status of the latest research being done. It also has a referral service to help support other groups and provides access to Barnes and Noble Publications concerning Down Syndrome.

National Fragile X Foundation: This site summarizes recent events and posts upcoming events on the Foundations calendar as well as providing information, resources, and references. Additional supports, information and materials are available to parents and professionals in various specific areas.

Epilepsy Foundation of America: You will find descriptions of epilepsy, information about the Foundation itself and links to related sites. There are special sections that are geared towards women and children with epilepsy, as well as an online bookstore you can browse.

Take a Closer Look: This commercial site offers information about the company's products that are accessibility aids for computers. Some of their products and keyboard guards that allow a person with a great deal of involuntary movement access to a computer, a huge keyboard with an accessible layout as well as pointing devices and other devices that allow one hand access to the computer.

The Electronic Speech Enhancer Information Page: This is a commercial site that provides public information about an automated speech processing system that will clarify and/or provide volume increase for people with speech problems. "Communication with strangers is often the front door to independence." is their catch phrase, but is true none the less. This new device is patent-pending and is used as a prosthetic device, diagnostic and therapy tool.

Alliance for Technology Access: If you're looking for practically anything technical in the way assistive devices chances are these people can help you.

Infogrip, Inc. Home of the one handed keyboard: This site offers more than 200 products including one handed keyboards, voice reco9gnition software, ergonomic keyboards, mouse alternative pointing devices, touch screens, switches and switch access products and ergonomic supports to name a few. You can request a printed copy of their catalog by filling out a form on the page or by e-mailing their sales dept. They also list their postal address for those that prefer licking stamps and envelopes.

U.S. Department of Justice, Civil Rights Division, Disability Rights Section: The table of contents list the ADA, Fair Housing Act, Air Carrier Access Act, Civil Rights of Institutionalized Persons Act, Individuals with Disabilities Education Act, Rehabilitation Act, Architectural Barriers Act and other sources of disability rights information. Reproduction of the documents are encouraged as are their distribution.

Adoptive Computing Technology Center: A university-based program specializing in adoptive technology.

Disability Information for Students and Professionals: This site is designed for the student that is working towards a career in working with individuals with disabilities. You will find job listings, opportunities, a live time discussion forum and over 200 links to other disability sites organized in an easy-to-find reference categories.

Pedia Net: A comprehensive pediatric health and information resource for parents, children, and health professionals.

Family Village Library: An online "card catalog" covering hundreds of disabling conditions; all are written for the non-professional and very easy to understand.

Disability Access (England)

Disability Net (England)

Parents Helping Parents: A good site for parents with disabled children.

National Family Caregivers Association: A organization serving the needs of caregivers, an often overlooked segment of the disabled community.

National Center on Accessible Transportation: Take our survey and make the difference

New Mobility Magazine: I highly recommend this magazine and their web site. It's fun, very useful, and features a unique real time chat page.

Mainstream Magazine: One of the few magazines for the disabled that's stood the test of time. Good Links.

Ability Network (Canada's Cross Disability Magazine): Good resource with GREAT kids section on the site.

IMPACT Online: A cyber mag dedicated to telling it like it is from the looks of it. It's still being developed and will undoubtedly get even better. Bookmark this one!

Precision Medical Ltd: A commercial site from a manufacturer of orthopedic appliances and accessories for the disabled and sports medicine.

Cerebral Palsy MagazineT is a quarterly special-interest publication focusing on issues related to Cerebral Palsy. First issue of this new magazine will be published in June, 2003.

WOWUSA FOR KIDS!: A fun, graphical site for special kids with an upbeat look and a way cool attitude!

Michelle Bradley-Kennedy recommends THIS SITE

For Grace: The Dream Of Never Again Changing The World Of RSD

Diana's House: A true treasure trove of disabled-related links and more.

Goodwin's Homepage: A homepage, but so much more. The links are more oriented toward disability activism than most and a good resource if you're interested in that area.

Words +, Inc.: A 16-year-old OEM company specializing in Alternative & Augmentative Communication (AAC) devices. A large selection to meet most AAC needs.

Harbor Regional Center (Southern California Resource for Developmental Disabilities): HRC is part of a state wide network of centers that serve adults and children with developmental disabilities including Down's Syndrome, Cerebral Palsy, and Epilepsy.

San Francisco SPCA (Hearing Dog Program): A wonderful program and site. This is where I got my "hearing dog" Ivy.

GINCO (Lift/Mobility Equipment: If personal care freedom is important to you, check this out.

The Boulevard: A unique online shopping mall featuring products for the disabled.

The PeopleNet DisAbility DateNet Home Page: Although not X-rated, THIS SITE IS SUGGESTED FOR MATURE READERS ONLY! This unique site focuses on disabled sexuality in a very open, straight forward manner.

Rock N' Roll Cycles: Rock N' Roll Cycles:has been manufacturing special outdoor therapy/fun cycles for virtually every special need, Including Cerebral Palsy, visual Impairments, Spina Bifida, or blindness, ect. They specialize In helping families obtain equipment at low to no cost at all.

News:alt.support.cerebral-palsy: This news group is an excellent way to ask questions, find answers, or just get in touch with others; usually has the latest info on IRC chat and other stuff.

CRAYON News and Newspaper Connection: You simply won't believe the number of news media you can link to from this site! Or-build your own customized "cyber newspaper" for yourself or anyone who might visit.

Virtual Reference Desk: Hours and hours of browsing. It's got it all!

People Locator / White Pages: Looking for someone, (no not the love of your life, that's up above at Gary & Debra's or the Cyber Disabled Dating/Mating Service), try this service.

Frances Becomes a Person recounts the eventful life of author Ruth C. Webb's beloved housekeeper, Frances Elizabeth Lohr.  Virtually an outcast, Frances ' journey begins at the age of thirteen.  The journey on which she continues throughout most of her life will lead her toward the goal of finding a home - and a purpose.

Many events make mildly retarded Frances feel alone, unwanted, and unloved.  After the devastating death of her father, Frances moves from her family's home to a neighbor's farm.  Here, Frances encounters a farmhand who rapes her.  When worsening seizures force France to be moved to a county home, she finds a new purpose-as a kitchen assistant.  Just when she is comfortable in her new life, circumstances force Frances to move again, this time to a state hospital school.

After twenty-two years of the same routine at the state home, Frances is presented with a new opportunity.  Dr. Ruth Webb, a new psychologist in town, needs a housekeeper-and Frances is the top candidate.  With Dr. Webb, she finally finds a loving home, where she continues to learn, grow, and contribute to others until her death at age seventy-five.

Ruth C. Webb, Ph.D., was born with Cerebral Palsy.  She attended Drew University (B.A.), Syracuse University (M.A., ED), and the University of Illinois (Ph.D., DHL).  Dr. Webb spent twenty-five years working with physically handicapped and mentally retarded persons. The University of Iowa Press published her memoir, Journey into Personhood, in 1994.

Frances Becomes a Person is available in paperback or e-book at:

E-book
Paper Back

ISBN: 0-595-34893-9 (paper) 0-595-79611-7 (e-book)

people who experience
    mood swings
fear
            voices
                visions

each other on the internet
        for advocacy and support

Her website:  www.peoplewho.org

Her Blog:  sylviaisseventy.blogspot.com

Governor Of California

There is the possibility that Governor Schwarzenegger will be making many cuts. The one area he hasn't dropped is the In-Home Support Services which makes it possible for many people to continue living on the own.

Anyone Is welcome to call, write and \ or email the Governor with their opinion.

EMAIL

http://www.governor.ca.gov

Mailing Address

Governor Arnold Schwarzenegger
State Capitol Building
Sacamento, CA 95814

The phone number Is: 1-888-780-9275, Select 8, then 2, to get to an opportunity to record on the comment line.